About Me

TearDrops and Roses

Silent Disease/Fibromayliga

Welcome!

I would like to dedicate this page

To a Dear ,Sweet friend of mine,

That has been just diagnoised with Fibromyalgia!

BLESS YOU CARMEN!!!!

I LOVE YOU!

I have just discovered

that another great ,dear sweet friend

of Mine & Carmen's,

was dx with Fibromyalgia,

April 28,2004.

We All love you Melissa

And will help in anyway we can!

With Love ,

Aloma & Carmen

This is the page

where I'll describe myself

and my

*Silent Disease* Fibromyaliga

in more detail.

National Fibromyalgia Day ;

Please take a special moment

on this day

to remember the ones

whom suffer from

this Silent Illness.

Thank you!

National Fibromyaliga Awareness

" Fibromyalgia is not something we would ever choose to have, But if we have it, We must reach a point where we accept the condition as part of ourselves."

             by; Mark J. Pellgrino M.D.

             "Inside Fibromyalgia"

                               pg..213

"The beautiful thing about learning is no one can take it away from you!"

                 by; B.B. King

Dealing With "Fibro-Fog"

or Brain Freeze

Short term memory loss.....

"If you cannot remember

what you had for dinner last night

& your neighbors name

is on the tip of your tongue

but has not yet come to mind,

you're definitely not alone!.

Studies are now conclusive

that cognitive impairment in

(FMS) and (CFS) patients,

Specially memory & vocubulary defiencies,

is quite real.

Here are 10 tips to cope;

*1-Keep a pad & pen nearby

to jot down key information.

*2-Focus on what people are saying

when you are communicating with others.

*3-Use word association.

*4-Turn phone numbers into words,

if they are hard to recall,

for example

438-263-6679 could become

GET-A-MEMORY.

*5-Organize grocery lists

into meaningful categories.

*6-Use visualization-

try to create a mental image

of the thing

you need to remember.

*7-Eliminate distractions

as much as possible

-turn off the t.v. or radio.

*8-Try to keep your home or office

organized in a logical way.

*9-Use a kitchen timer

to jolt your memory.

*10-Put it to music.

Some patients find that singing helps

them to remember certain things

more easily.

Source;

The Fibromyalgia Handbook:

( A 7-Step program )

Taken from the website;

http://www.immunesupport.com/

Fibromyaligia....

A Tribute in Honor

of those who suffer

with this

*Silent Disease*

Hello!

My name is Aloma,

I am 49 years young, female.

A mother of 3, a step-mother of 3

and grandmother of 7.

Until Jan.16th, 2003,

I worked a full time job

as a cashier in a

local convience store.

In 2002, I was dx with FMS

(Fibromyaliga)

I know (sadly)

This is only the beginning for me.

Some have lived with this

condition /disease years upon years,

Never getting any relief or

understanding (only from fellow sufferes.)

PLEASE..

If you hear, meet or live with Someone

who has This condition/disease ,

Lend a heart or hand,

But gently though,

FM'ers are more sensitive than

* normal people*

PLEASE..PLEASE..

give us understanding & kindness...

We need your help!...

Not the stares, snickers or gossiping!

*We look normal*,

But silently we suffer

and suffer greatly!.

FMS is a non-fatal condition/disease

.......only in recent years

just being reconized by the

Medical Fields and Science.

No the condition/disease

in itself is not fatal.....

just to those whom

don't have the energy or the willpower

to go on surviving.

More than the world will ever know,

How many have died,

due to sucuide and other unknown reasons...

The misunderstanding of our illness

makes it a lonely condition/disease,

along with the pain........

#1..Science...(not enough research)

#2..Doctors...( Mental ,it's all in your mind)

#3..Family...(Misunderstanding...thinking lazy,an extremist)

#4..Friends..(not enough knowledge of condition/disease)

FMS known as a Silent Disease /Condition, Named so ,because science hasn't found the cause.

FMS zaps the energy, the mind,

And our ability to do

common chores others

take for granted.

FMS'ers are real human beings,

people with real dreams /needs,

our dreams/needs are just different now!

We hurt constantly and are sore constantly..(more than just normal aging )

(,aches and pains)

Our speech and thought patterns

are affected...

dsylexia, etc...

Things normal people usally do

without a thought,

we have to concentrate

on very hard.

Our mind and body connection,

our mind sends the signal to do,

but body is slow to react,

sometimes not at all!

The worst for alot is

The pain of our muscles,

The soreness never ends..

(a constant)

(muscle ache ,soreness & tightness)

Pain Pure Pain!

Help Science, Doctors, Family ,Friends

Learn to help & understand

This awful condition/disease!

Thank You

ASP/03

Poem written by Melissa Powell,

Newly dx with Fibromyalgia,

April, 20

"YOU & I ...ALWAYS!"

I know by now that I should be able to read your mind,

But some lately, that signal is kinda hard to find,

And it is with good reason that I have not been able to find ya,

I am sick, newly dianoised with auto-immune disease called Fibromyalgia.

Not only does it affect my body,

It puts my mind in a haze,

So I have not really been myself

in the past months and days,

I go to speak ,and I forget

what I was going to say,

But I will always be there for

You come what may.

I am going to need you

like I never have before,

Because it is going to make

me forget things,

And severely make my body sore,

You say you have an attitude , that is ok....

But I need you now, Not when it's gone,

But Please understand how

it is gonna make me act,

And I am not trying to be withdrawn.

Lean on me, and I will lean on you,

I will ALWAYS be there to see you through,

You are always welcome

and you never have to ask,

Trust in me, and I will trust in you,

Walk a mile in each others shoes!

-written by;

Melissa Powell/2004

http://www.thestarlitecafe.com/poems/83/poem_628433.html/

God Bless You

My Sweet Dear

Sister Friend Melissa!

Love you deeply;

Aloma

For more info

On Fibromyaliga...

http://fmaware.org/fminfo/brochure.htm

( Hard to believe, huh?)

Note Please;

If I have used or displayed anyones imagaines, info or etc....And you would like me to remove them .....Please e-mail me , & let me know, or if you would like me to add your name to the product I would be happy to.

I apologize if I have caused any upset to anyone....

Thank you!

Aloma S. Patrick

alomasp@aol.com

Aloma and Dad

Aloma with her Dad, My Hero

Under Construction

Fibromyalgia Awareness Ribbon

"Support Your Friends & Family whom Suffer With Fibromyagila

A Beautiful Poem

written by a mutual friend

And FMS Sufferer......

* Suffering Fibromyalgia / Acrostic*

So much excruiating pain can drive one insane

Useless you feel and try very hard to abstain

From filling prescriptions of harsh pain med's

Fighting a pain racked body just to get out of bed;

Eternal weakening, so tired and depressed

Reaching out for some help, feeling so oppressed

In your own body it's a fight to even smile or dwell

Night and day feeling as though you're sinking in hell

God I've not turned loose from you nor turned away

Forcing each step with pain so deep inside you cry

Interfering with your life, stripping away your pride

Believing and hoping someday they will find a cure

Relieved to know Jesus is always with you for sure

Oh dearest father, have mercy on your hurting Child

My strength is so weary and my mind just runs wild

Yearning to walk and have fun just like the others can do

Against all odds just trying to tie your own shoes

God I know you love me and by Jesus stripes we are healed

I just can't bear the load my Savior, as before you I kneel

Always praying and waiting for my healing to be revealed;

For all my friends with pain , just remember you are never alone, for our

Father is with us as we suffer this invisable disease.....We may not look

sick on the outside but one can never judge a book by it's pretty cover....

That was inspired by a sweet Angel friend who was just diagnoised with

The Fibromyalgia......I love you and I CARE!

By; Margaret L. Schoolcraft Gray

2004 Margert L. Schoolcraft Gray

Link to her poems....

http://www.thestarlitecafe.com/poems/82/poem_612657.html

under contrustion

Here is another poem about Fibromyalgia... This one was written by Carmen.....My dear sweet friend, that this page is dedicated to!

" Fibromyalgia"

I sometimes feel I'm made of jello & wood,

It's hard to just walk across the floor.

Wobbly & stiff , not able to do what I should.

My energy wans, much quicker than before.

The doctors , they say there is No cure.

Well, there is a depressing statement....

But, How can they be so certain, So sure?

More research funds should be raised & spent.

There are some, so much worse off than me,

With canes, walkers ,and such.

This disease can make it impossible to be free,

And to continue what you enjoy doing so much.

So, We must all stick together,

Fibro can rule your Life.

How I wish there were a magicial lever

To pull, dissapating all this pain & strife.

This poem is lovingly dedicated to everyone who

Suffers from this painful, and so far, uncurable disease.

May God watch over us, and may there be a cure found soon!

By; Carmen (Princess1)

Link to poem....

http://www.thestarlitecafe.com/poems/82/poem_614225.html

Living With Fibromyalgia